WHO'S "THE CURE" FOR?
Women Living with HIV/AIDS: Towards New Ethical National Research Policies

Speech by Maxine Wolfe
National Conference on Women & HIV
Pasadena 5/97


Chart 1

The Faulty Foundations of Current
Research Programs and Policies

The Building Blocks for Ethical
Research Programs and Policies
1. Women living with HIV/AIDS don't exist. 1. Women living with HIV/AIDS do exist.
2. There are very few women living with HIV/AIDS. 2. As of 6/96 -- 78,654 cases of women with HIV/AIDS were reported. The number grows by 14,000 per year.
3. Most women living with HIV/AIDS are in the earliest stages of infection. 3. Women living with HIV/AIDS are at all stages of infection.
4. Women living with HIV/AIDS don't want to participate in research. 4. Women living with HIV/AIDS will participate in research that speaks to their needs and lives.
5. Women living with HIV/AIDS are not capable
of making decisions about their lives.
5. Women Living with HIV/AIDS, no more and no less than men living with HIV/AIDS, are capable of making decisions about their lives.
6. Women living with HIV/AIDS are only a sub-group of the population of PWAs (people of color, children and older people are also only sub-groups). Guess who the population is? 6. All people living with HIV/AIDS are only part of the population of PWAs. No one is a sub-group.
7. There are no differences between women and men living with HIV/AIDS. 7. There ARE differences between women and men living with HIV/AIDS in both bodily functioning and anatomy.
8. If there are any differences between women and men living with HIV/AIDS it is only in reproductive organs and functioning. 8. There ARE differences between women and men living with HIV/AIDS not based on reproductive function or anatomy.
9. Women transmit HIV to others (babies and men, but not to other women) more often than HIV is transmitted to them (­ the vector theory). 9. Women are more likely to have HIV transmitted to them than to transmit it to someone else.
10. All Women with HIV/AIDS either want to become pregnant or are pregnant. They care about having children more than they care about their health and lives. 10. Some women living with HIV/AIDS want to have children: some don't. Some are already pregnant; most are not. Women should NOT have to choose between their health or life & having a child.
11. Women living with HIV/AIDS and their children who live in other countries are expendable. 11. No human being is expendable for any reason.
12. Statistics matter more than the lives of women living with HIV/AIDS. 12. Lives matter more than statistics, good science doesn't have to sacrifice lives.
13. Women living with HIV/AIDS are less important and worth less than men and children living with HIV/AIDS. 13. The lives of all people living with HIV/AIDS are equally valuable.
14. Women living with HIV/AIDS will have to wait years until we know as much about them as about men. 14. Women living with HIV/AIDS do NOT have years to wait. Who's "the cure" for? DO RESEARCH TO SAVE WOMEN'S LIVES.

 

To Chart 2: Towards an ethical national research policy

 

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